These community members wanted a treatment that fit into their day, wherever it may take them. Hear how an oral at-home treatment worked well with their routines.
The most important part of Payton’s daily routine is that Evrysdi. I absolutely love being able to give Payton her medicine at home. Payton takes her medication early morning, so I wake her up, get her some breakfast, and then she gets her Evrysdi, and we are out the door. She’s so used to it now that she takes her pacifier out and opens up ready to get her dose every day. Evrysdi really matches our lifestyle.
I’m a man of routines, and so I just incorporate it into my daily routine. Middays, I stop at work and take the Evrysdi, wash it down with a little bit of water afterwards, and get right back at it.
When I think about giving Bear his treatment at home, I am always impressed. It feels kind of unbelievable that we went from really having no options to having a treatment that is in my refrigerator that I can travel with, that he can take anywhere, that I can give it to him if he’s taking a nap because it goes through his G-tube.
It works for my life perfectly because it’s an oral medication, and I can stay home and take it. I typically take my Evrysdi at nighttime; after a big meal, I take Evrysdi. I have an Evrysdi cooler, and I use that, and I carry it wherever I’m traveling to. So, I’m not confined to taking my medication at one place.
Making the change to Evrysdi has been amazing, and taking Evrysdi at home fits with my lifestyle and it fits with my schedule. Every morning, I have my breakfast, and my caregiver helps me take Evrysdi. I have a little bit of water, and I go about my day.
So, when we travel, I take Evrysdi with me. It goes in a cooler. That way it can stay regulated at a certain temperature and it’s ready to go. We lead very busy lives. We are constantly filling up our schedule. We’re running out the door late to school, or maybe we’re off camping for the weekend. Evrysdi works for our family because it’s on the go, just like us.
What we really like about Evrysdi is it just fits into our daily life. It’s a liquid I take every day. Even if we travel, we just take it with us, and wherever we are, whether we’re at home or whether we’re traveling, I can take it.
This is how I Evrysdi.
This is how I Evrysdi.
This is how we Evrysdi.
This is how we Evrysdi.
Información de prescripción de Evrysdi® (risdiplam). Genentech, Inc.
Información de prescripción de Evrysdi® (risdiplam). Genentech, Inc.
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