US Healthcare Professionals

Connect and chat with an Evrysdi community member

Connect and chat with an Evrysdi community member

Sign up below for a live video session

Get connected

Personal connections

Evrysdi community member availability may vary.

Are you or is someone you care about living with spinal muscular atrophy (SMA)? You are not alone. Some of our proud Evrysdi community members understand the challenges of living with SMA and want to share their experiences.

That’s why Genentech is now offering a program that connects you with someone taking Evrysdi or their caregiver through a live video call. These calls allow you to chat with an Evrysdi community member and ask questions about their SMA journey and their experience with Evrysdi.

You don’t need to be taking Evrysdi to participate in this program.

You don’t need to be taking Evrysdi to participate in this program.

Pair up with one of your peers

Getting started is simple

1

Fill out the registration form below to register

2

We will contact you to schedule a video call

3

You will be matched with an Evrysdi community member who may have similar experiences as you

Connect on your terms

These video sessions are for you to chat with someone also living with or caring for someone with SMA. You can talk with your peer about relevant topics during your time together, such as the SMA journey or the Evrysdi experience.

"When you need support, you can often find it in the Evrysdi community. You can find other people that may be a little further along on their journey of living with SMA than you are and gain wisdom and knowledge from them."

Jose, living with Type 3 SMA

Sign up today

Fill out the form below to schedule a live video session.

Genentech and its agents will collect your personal information in order to facilitate your registration. You will be contacted by phone within 2 business days to find out more about you in order to schedule a call with the most appropriate patient ambassador for your needs. By submitting this registration I understand that my personal information, some of which may be considered sensitive information, such as information about health conditions, will be used and disclosed as described in Genentech’s Privacy Policy, and that I may be contacted using the information I have provided.

*Indicates required field.
Must be 18 years of age or older to sign up.

For additional Genentech support services:

Evrysdi community members do not provide medical advice and are not substitutes for your medical team.

Thank you for signing up! We will reach out to you shortly.

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Evrysdi community members do not provide medical advice and are not substitutes for your medical team.

Important Safety Information and Indication

What is Evrysdi?

Evrysdi is a prescription medicine used to treat spinal muscular atrophy (SMA) in children and adults.

  • Before taking Evrysdi, tell your healthcare provider about all of your medical conditions, including if you:
    • are pregnant or plan to become pregnant, as Evrysdi may harm your unborn baby. Ask your healthcare provider for advice before taking this medicine
    • are a woman who can become pregnant:
      • Before you start your treatment with Evrysdi, your healthcare provider may test you for pregnancy
      • Talk to your healthcare provider about birth control methods that may be right for you. Use birth control while on treatment and for at least 1 month after stopping Evrysdi
      • Pregnancy Registry. There is a pregnancy registry for women who take Evrysdi during pregnancy. The purpose of this registry is to collect information about the health of the pregnant woman and her baby. If you are pregnant or become pregnant while receiving Evrysdi, tell your healthcare provider right away. Talk to your healthcare provider about registering with the Evrysdi Pregnancy Registry. Your healthcare provider can enroll you in this registry or you can enroll by calling 1-833-760-1098 or visiting www.evrysdipregnancyregistry.com
    • are an adult male. Evrysdi may affect a man’s ability to have children (fertility). Ask a healthcare provider for advice before taking this medicine
    • are breastfeeding or plan to breastfeed. It is not known if Evrysdi passes into breast milk and may harm your baby
  • Tell your healthcare provider about all the medicines you take
  • You should receive Evrysdi from the pharmacy as a liquid. If the medicine in the bottle is a powder, do not use it. Contact your pharmacist for a replacement
  • Avoid getting Evrysdi on your skin or in your eyes. If Evrysdi gets on your skin, wash the area with soap and water. If Evrysdi gets in your eyes, rinse your eyes with water
  • The most common side effects of Evrysdi include:
    • For later-onset SMA:
      • fever
      • diarrhea
      • rash
    • For infantile-onset SMA:            
      • fever
      • diarrhea
      • rash
      • runny nose, sneezing, and sore throat (upper respiratory infection)
      • lung infection (lower respiratory infection)
      • constipation
      • vomiting
      • cough

These are not all of the possible side effects of Evrysdi. For more information on the risk and benefits profile of Evrysdi, ask your healthcare provider or pharmacist.

You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at 1-888-835-2555.

Please see full Prescribing Information for additional Important Safety Information.

    • Información de prescripción de Evrysdi® (risdiplam). Genentech, Inc.

      Información de prescripción de Evrysdi® (risdiplam). Genentech, Inc.